Quantified self-experimentation with personal health is a growing activity today. By collecting and sharing personal health data through self-tracking devices and health networking services, self-experimenters engage in a unique form of n=1 citizen science-style research. This data sharing altruism is constrained by limited data security, validity, as well as socio-economic access – issues that we will explore as design challenges. The workshop invites HCI/STS researchers, practitioners, healthcare professionals, as well as corporate actors interested in the self-experimentation domain. 

Themes, provocations and design challenges:

The workshop activities will revolve around three leading themes comprising of "provocations" and "design challenges".

Theme I: Validity and reliability issues

Provocation: The data practices in self-experimentation projects rarely meet the standards of rigorous scientific research.

Design challenge: How can design solutions (interfaces, activities, tools) increase the adherence to more structured research protocols and baseline measures for data collection and evaluation?

Theme II: Security and privacy issues

Provocation: Data sharing practices in online health communities often benefit to corporate stakeholders rather than to the end users. That brings in certain privacy issues.

Design challenge: How can design help to balance the altruistic data sharing intentions with the market-led goals? How to manage archival of the data to mitigate potential misuses by nefarious third parties?

Theme III: Socio-economic access

Provocation: Self-experimentation services are affordable only to certain socio-economic cohorts.

Design challenge: How can design support social robustness of self-experimental healthcare?

See Themes for more details

SUBMISSION FORMAT:

Proposals (4 pages max in the CHI Extended Abstracts format sent as pdf) should include scenarios, prototypes or mockups of future health data sharing practices, as well as ideas for creative hands-on activities to be conducted during the workshop. Proposals do *not* need to have the CHI copyright statement on the first page, as they won't be published in the CHI proceedings. Proposals will be selected based on their originality and quality by the workshop organizers, and may be mailed to workshop@digitalhealth.science

Accepted participants will introduce their proposals during a round table discussion. Proposals will be further activated through hands-on self-tracking activities, scenario building, and prototyping around the identified themes. Participants are also welcomed to suggest other previously unmentioned themes, provocations, and challenges. 

Important dates:

  • Early acceptance round for participants: (on or before) 21 December 2016 (notification back to authors: 23 December 2016)
  • Participants' final submissions: (on or before) 10th March 2017 (extended)
  • Acceptance notification back to authors: 8th March
  • Workshop days: Saturday 6 May 2017 (One-day)

VENUE:

Colorado Convention Center, Denver, CO / The workshop is organized as part of CHI'17

*Please note that all workshop participants must register for both the workshop and for at least one day of the main CHI conference.*

Post-Workshop Plans:

We will focus on ensuring an ongoing discussion and sharing of resources among workshop participants and other interested parties. This will comprise of scenarios, prototypes, and other media content (images, video, text documentation) created during the workshop to be shared here, on the workshop website. To extend the outcomes of workshop activities to the wider HCI audience, we will invite selected participants to contribute towards a special issue on health self-experimentation of a leading HCI / STS journal.